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Tuesday, July 21, 2020 | History

3 edition of The needs of parents of paediatric oncology patients during the palliative care phase. found in the catalog.

The needs of parents of paediatric oncology patients during the palliative care phase.

Linda Sue James

The needs of parents of paediatric oncology patients during the palliative care phase.

by Linda Sue James

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Published by National Library of Canada in Ottawa .
Written in English


Edition Notes

Thesis (M.Sc.) -- University of Toronto, 1995.

SeriesCanadian theses = -- Thèses canadiennes
The Physical Object
Pagination2 microfiches : negative. --
ID Numbers
Open LibraryOL17258850M
ISBN 100612020843
OCLC/WorldCa46499713

  Supporting the Patient Journey: The Role of Palliative Care in Pediatrics Slightly fewer than palliative care providers are focused on serving children in the United States. By Elaine Cox, M.D.   Pediatric palliative care physicians have an ethical duty to care for the families of children with life-threatening conditions through their illness and bereavement. This duty is predicated on 2 important factors: (1) best interest of the child and (2) nonabandonment. Children exist in the context of a family and therefore excellent care for the child must include attention to the needs Cited by:

Care of the Pediatric Oncology Patient. What are your fears about this •Parents oftentimes will need a lot of reassurance at diagnosis and through the treatment process that they did nothing to plants in patient-care areas for immunosuppressed patients (i.e., oncology.   Abstract. Providing end-of-life care to children with cancer is most ideally achieved by initiating palliative care at the time of diagnosis, advocating for supportive care throughout the treatment trajectory, and implementing hospice care during the terminal phase. The guiding principles behind offering palliative care to pediatric oncology patients Cited by: 6.

In this thesis, the long-term experiences of parents and physicians with palliative care for pediatric cancer patients were explored using questionnaires. Experiences of parents Regarding aspects of care, parents highly valued communication, continuity of care, and parental involvement during the palliative read more : I.M.M. van der Geest. Palliative care is a comprehensive system of care aimed at preventing or relieving the symptoms or suffering caused by life-threatening medical conditions. 1 Cancer, a life-threatening medical condition, is the fourth leading cause of death among children between the ages of 1 and 19 years and is the leading cause of disease-related death in children. 1,2 Some experts recommend that palliative Cited by:


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The needs of parents of paediatric oncology patients during the palliative care phase by Linda Sue James Download PDF EPUB FB2

Three needs were identified: (1) The need to have the child recognized as special while retaining as much normality within the child's and family's lives as possible; (2) The need for caring and connectedness with health care professionals; and (3) The need to retain responsibility of parenting their dying by: Three needs were identified: (1) The need to have the child recognized as special while retaining as much normality within the child's and family's lives as possible; (2) The need for caring and connectedness with health care professionals; and (3) The need to retain responsibility of parenting their dying by: Three needs were identified: (1) The need to have the child recognized as special while retaining as much normality within the child's and family's lives as possible; (2) The need for caring and connectedness with health care professionals; and (3) The need to retain responsiblity of parenting their dying by: It may or may not be that the needs of bereaved parents are reflective of the needs of parents during the palliative care phase.

Parents of terminally ill cancer patients have identified the importance of having information presented openly and honestly by health care professionals. 17 The amount and consistency of information parents received and parents' familiarity with the health care Cited by:   1.

INTRODUCTION. The World Health Organization (WHO) released a seminal report, titled Cancer Pain Relief and Palliative Care in Children, in which it recommended that palliative care (PC) for children with cancer ought to begin at diagnosis, irrespective of prognosis.

1 Other international health organizations—the American Academy of Pediatrics Cited by: 3. 18 Moreover, parents need to understand not only the information on cancer treatment, but also to learn the process of their role as a caregiver to improve the quality of their child's care. 18, Palliative Care for Diagnoses Other Than Cancer.

Traditionally, palliative care practice and discussions have focused on families of cancer patients, while care of the patient with cardiac disease (p.

61) has traditionally focused on restoring health and enabling a return to normal : Rose Steele. Resources to support palliative care and end-of-life care for children treated for cancer are often quite limited. A survey of member institutions of the Children’s Oncology Group (81% response rate) found that only 58% had a pediatric palliative care team available to families, although the following related services were available.

Palliative care includes the control of pain and other symptoms and addresses the psychological, social, or spiritual problems of children (and their families) living with life-threatening or terminal conditions. 2,3 The goal of palliative care is the achievement of the best quality of life for patients and their families, consistent with their.

2 Foreword FOREWORD The progress in Paediatric Palliative Care in Australia since the first publication of A Practical Guide to Paediatric Oncology Palliative Care inhas been substantial with the continued development of clinical services throughout Australia, and the on-going review of the quality of those services throughFile Size: 1MB.

Use of complementary and alternative medicine by pediatric oncology patients during palliative care Article in Supportive Care Cancer 24(7). Claudia Epelman and Sidnei Epelman, Department Of Paediatric Oncology, Santa Marcelina Hospital, Sao Paulo, Brazil And Inctr Brazil.

This article explains the need for psychosocial care to be a key part of the treatment process for young people with cancer. Such care should part of a multidisciplinary approach to cancer management and should involve not just the patient.

Palliative care is usually provided by palliative care specialists, health care practitioners who have received special training and/or certification in palliative care. They provide holistic care to the patient and family or caregiver focusing on the physical, emotional, social, and spiritual issues cancer patients may face during the cancer.

COVID Resources from Hospice & Palliative Care Organizations. National Association of Social Workers (NASW) National Coalition for Hospice and Palliative Care; Center to Advance Palliative Care (CAPC) National Hospice and Palliative Care Organization (NHPCO) American Academy of Hospice and Palliative Medicine (AAHPM).

Over the past two decades, paediatric palliative care has emerged as both a primary approach and as its own medical subspecialty, the overall aim of which is to ease suffering for children with Cited by: Although many childhood cancer patients and their families cope effectively during the illness course, 2, 3 it is quite clear that a significant subset of patients and their parents will indeed experience significant clinical levels of psychological distress at the time of diagnosis, during the course of treatment, and after treatment ends.

2 Cited by: Bringing normalcy to families' lives is a goal of pediatric palliative care, also known as pediatric advanced care (PAC). Many families, however, resist palliative care because they think it's. In this thesis, the long-term experiences of parents and physicians with palliative care for pediatric cancer patients were explored using questionnaires.

Experiences of parents. Regarding aspects of care, parents highly valued communication, continuity of care, and parental involvement during the palliative phase.

These Pediatric Cancer Patients Isolated During the Pandemic Are Getting Adorable Puppy Care Packages this link is to an external site that may or may not meet accessibility guidelines. End-of-life care is the term used to describe the support and medical care given during the time surrounding death.

Such care does not happen only in the moments before breathing ceases and the heart stops beating. Older people often live with one or more chronic illnesses and need a lot of care for days, weeks, and even months before death. Palliative Care Advance Care Planning Spiritual Care Palliative Care Team Pediatric Cancer Patient These keywords were added by machine and not by the authors.

This process is experimental and the keywords may be updated as the learning algorithm by: 3.In a recent study, parents of children with cancer who had died at home suggested better coordination of care as a way of improving palliative care services (Collins et al., ).

In the same study, some families reported difficulty in arranging for readmission of children to the hospital for control of symptoms. Many people still associate palliative care with care in the terminal stage of cancer, and patients with cancer remain more likely to receive it than those with other illnesses.1 It is often delayed until the last weeks or days of life once the illness is advanced and disease focused treatments are no longer effective.

However, late palliative care is a missed Cited by: